What is it like to have Duane syndrome?

What is it like to have Duane syndrome?

It presents as an eye movement disorder in which an individual’s affected eye is unable to look inward toward the nose and up. The affected eye may be out of alignment with the unaffected eye and may show a downshoot and/or a widening of the eye opening when looking inward and up.

How is the family of a person with Duane syndrome affected?

In a few families with isolated Duane retraction syndrome, the pattern of affected family members suggests autosomal recessive inheritance . In these families, one or more children are affected, although the parents typically have no signs or symptoms of the condition.

Does Duane syndrome get worse?

The condition remains stable (although it may not always be noticed immediately after birth) and will not get worse, but will not get better. It may be helpful to inform your child’s school teacher about their eye condition, if your child needs to turn their head to compensate.

Can you get surgery to fix Duane syndrome?

There’s no cure for Duane syndrome, but surgery can be used to try to improve or eliminate issues with head turns, reduce or completely remove considerable misalignment of the eyes, reduce severe retraction of the eyeball, and improve the tendency of the eye to deviate upward or downward with particular eye movements.

Can you fix Duane syndrome?

Because the affected sixth cranial nerve cannot be repaired or replaced, there is no cure for Duane syndrome. However, for people whose lives are significantly disrupted by the condition, surgery can be very helpful in: reducing or stopping the abnormal head posture many develop in an attempt to see better.

Is Duane syndrome inherited?

In most cases, Duane syndrome is not inherited . The majority of cases of Duane syndrome occur in individuals with no history of the condition in the family. About 10% of people with Duane syndrome have other family members with Duane syndrome.

How many people are born with Duane syndrome?

It has been estimated that approximately 1 in 1000 and 1 in 10,000 people worldwide have Duane syndrome. Duane syndrome is found in 1-5% of all cases that involve conditions where both eyes do not line up in the same direction (strabismus). Females are more likely to be affected than males.

What is the prognosis for Duane syndrome?

Do Duane Syndrome patients have other eye problems? The problem with the 6th cranial nerve is usually an isolated condition and the child is usually otherwise completely normal. With careful follow-up, the long-term prognosis for good vision is usually excellent.

What do you need to know about Duane syndrome?

Duane syndrome 1 Summary Summary. Duane syndrome is a disorder of eye movement. 2 Symptoms Symptoms. Duane syndrome (DS) is present at birth and is characterized by limitation of horizontal eye movement (a limited ability to move the eye inward toward the nose (adduction), 3 Cause Cause. 4 Learn More Learn More.

Can a person with Duane syndrome have lazy eye?

In addition, the opening of the eye may be narrow. Some people with Duane syndrome develop “lazy eye” ( amblyopia ), a condition that may cause vision loss in the affected eye. Duane syndrome usually only occurs in one eye, and is not associated with other signs or symptoms.

How does Duane’s retraction syndrome affect the eye?

Duane syndrome affects the eye muscles so that the ability to move the eye inward, outward, or in both directions is limited. In this article, you will learn about the condition, its impact on daily living, and when it requires treatment. Also known as Duane’s retraction syndrome, eye retraction syndrome,…